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Warriors of CRPS

 MythBusters

MythBusters: TRUE OR FALSE

itch - MythBusters & Ineffective Treatments

Is there such a thing as the CRPS Itch? True

Click here to read all about it https://warriorsofcrps.org/crps-neuropathic-itch/  

Can Spinal Cord Stimulators take away all my pain? False

There is a misconception among some warriors that the Spinal Cord Stimulator can completely eliminate all pain, but this is not true. It can, however, significantly reduce pain, often by 50% or more for specific individuals. The effectiveness of the treatment largely depends on the precise placement of the leads in the back. Therefore, it is crucial to ensure that your doctor fully understands the exact location of your pain before undergoing the procedure, as this can optimize the potential benefits of the Spinal Cord Stimulator.
spinal stimulator - Mythbuster

Is it true a CRPS patient should avoid giving blood? False

It is advisable to have blood drawn for laboratory tests every 3-6 months. It is essential to request your doctor to check your lab values regularly to monitor for any potential changes. Monitoring vitamin D and C levels, as well as hormone levels, can be highly beneficial for your overall well-being. CRPS can affect the absorption of vitamin D in our bones, leading to potential brittleness, and prescription strength may be necessary to counter this. Even in young individuals, pain patients’ hormone levels can fluctuate, which may contribute to depression and increased pain. Regular monitoring can help identify and address these issues proactively.

Can stress be detrimental to CRPS? True

  Stress can have detrimental effects on both our physical and mental well-being, often leading to CRPS flares. While it’s impossible to eliminate all stress, we can manage how we respond to it. One practical approach is to prioritize tasks, placing the most important ones at the top of the list and addressing the rest in order of significance. By doing so, even if we can’t complete everything, we will have accomplished the essential tasks. Remember not to let the small things cause unnecessary stress. Instead, focus on maintaining a balanced and proactive approach to stress management.

I can deduct all my medical expenses. True

  Were you aware that all your medical expenses can be tax-deductible? Yes, indeed! This includes deducting the mileage expenses for trips to and from doctors, pharmacies, physical therapy, and treatment centers. Additionally, copays, meal costs, and hotel expenses related to medical purposes are also deductible. To ensure accurate record-keeping, keep all receipts and maintain a calendar to track appointments and mileage. Keep in mind that there is a minimum threshold of medical expenses required to be eligible for deductions.

Despite the discomfort it may bring, can exercising can be highly beneficial? True

  The saying “What You Don’t Use, You Will Lose” is especially true for individuals with CRPS (Complex Regional Pain Syndrome). In CRPS cases, limbs and body parts may suffer from stiffness or reduced mobility. When muscles are not used regularly, they tend to contract, impeding blood circulation and weakening bones, leading to increased pain. However, it is crucial to persist in moving your body, even if it hurts, as consistent exercise can yield long-term benefits for your overall well-being.
heating pad - mythbuster

Heating pads make CRPS worsen. False

  Heating pads have proven to be effective in alleviating CRPS pain, and their benefits extend throughout the year, including the summer months. For those battling CRPS, managing temperature fluctuations within the body can be challenging, particularly struggling to stay warm during winter, which may contribute to increased pain and occasional flare-ups. Thankfully, heating pads can provide relief by offering soothing warmth and comfort. However, it is essential to use them with caution. Avoid keeping the pad at high-temperature settings on the skin for extended periods, as it may cause burns. Moderation and attentive usage are crucial to ensuring safe and beneficial results.  Be aware results can vary with patients. Some patients cannot handle the heat or cold.

Diet can affect inflammation True

  Adopting an anti-inflammatory diet can be immensely beneficial in managing CRPS. Certain foods have the potential to trigger inflammation in our bodies, adding to the physical challenges that doctors need to address while treating our pain. To help you better understand this approach and explore suitable dietary choices, visit the links provided.  1. Diet, Chronic Pain & CRPS  2. Naomedical 
Procedures - mythbuster

Can you get or spread CRPS with an invasive procedure?  True

  Invasive procedures like shots, blood draws, and surgeries have the potential to trigger the spread of CRPS (Complex Regional Pain Syndrome). Unfortunately, this is a possibility that cannot be ignored. Despite this, it’s essential to acknowledge that some of these procedures are necessary for medical reasons, and discontinuing them altogether is not advisable. Avoiding essential procedures could lead to equally severe or even worse consequences. However, it is prudent to minimize the frequency of such procedures whenever possible.

CRPS patients don’t need a DEXA scan. False

Bone Density: The Importance of Monitoring Bone Thickness and Density. Monitoring the thickness and density of your bones is crucial, especially for individuals with CRPS (Complex Regional Pain Syndrome). This monitoring is achieved through a Bone Density Scan or DEXA Scan, a straightforward procedure similar to an X-ray. Performing this scan regularly, ideally on an annual basis, allows us to detect any changes that might occur. Taking this proactive step can help in early identification and management of potential issues. Don’t hesitate to discuss the possibility of starting bone density monitoring with your doctor today.
dexa scan - mythbuster

Vitamin C can make all the difference. True

Vitamin C: A Potential Tool for Preventing CRPS Spread Post-Surgery. Numerous studies have linked vitamin C to the potential prevention of CRPS (Complex Regional Pain Syndrome) spread after surgery. Initially, the recommendation was to take 500mg daily for a week leading up to the procedure. However, more recent research has demonstrated significant improvements with IV-infused Vitamin C after surgery. This approach not only aids in pain control but also accelerates the healing process. Moreover, it has been observed to reduce the duration of pain medication needed during the recovery period. Despite its efficacy, vitamin C is often underestimated as a valuable asset in our arsenal for preventing and caring for CRPS.  Find more information:  Vitamin C: Treatment of Pain  Intravenous Vitamin C